Tips on Tuesday: Keep a Journal

I think it's important to keep a journal. 


I have a beautiful day-to-day calendar that I make notes in. On the monthly page, I mark the days & times seizures happened. Then on the day to day pages, I make notes of what actually happened:

- time a seizure started,

- when rescue meds were given, 

- if we went to the hospital,

- if there were med changes

- any odd notes from the day that might somehow make some sort of connection down the line (examples: woke up super early, rash appeared after rescue meds, vomited earlier in the day, etc)


This is good for reflection and to see changes over time. I know there are likely apps and such for this, but this has helped me. I also find writing it out has been a good (ok, maybe the correct term is more "necessary") way to process what happened as well.


Here are the last two years in review:


I just marked this off from my notes. This is a little skewed because some of the marks for Daring in January 2020 were myoclonic seizures that I was recording ... until they became 10 or so at a time multiple times a day. 


I can look back on these in my physical planner because of notes I take on my phone. I'll touch more on this later, but my phone is always on hand to: call 911, note when a seizure started/ time it, record it if necessary, and make notes that I can expand on later in my planner.


I hope you're finding these entries helpful so far. Please leave a comment if you have any questions or topics you'd like me to expand on.

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